Salycilate free or low salicylate help please!

[Teresa408]

Penelopejane-

I have noticed that I can get away with some BBQ sauce better than ketchup. I will have to check labels for that. It makes sense as a way to get some sweetness in there.

For potatoes, I’m under the impression that they are better tolerated if peeled and the little red ones are better than plain russets. From a nightshade perspective, at least.

For my dairy intolerance, yogurt is better than milk, goat cheese is better than other cheese, but the harder the cheese the better, so Parmesan is better than Brie. I can handle a little bit but not a lot.

I think your issue with concentrated cheeses may be something else. Sometimes there is yeast or whey or other flavors besides just cheese added to chips. I find almost all forms of probiotics are horrible for me; kombucha, sauerkraut, and yeast bothers me too.

Earlene- I found that out just last week! I hate it because I love mint. I just made a lime/mint soap and I was about to order some rosemary/mint FO because I love how tingly and refreshing it is. I’m going to bookmark that link though just in case. I feel like I’ve given myself a huge research project with no due date.

Dawni- I figured you’d come through with the link. That is an AWESOME reference. Bookmarking because it’s too much good intformation to remember all at once.

Battle gnome- I hear ya on shipping costs. I will get some RBO tomorrow and try something with just that and cocoa butter and another with some lard.

Penelopejane-

Per this website; http://www.fibromyalgie-guaifenesin.info/en/salsearch/

Both annatto and madder root contain salicylate. I had to plug in the scientific names but they were in the database. Unfortunately, I don’t know how much salicylate per gram but we do know that spices tend to be concentrated sources.

Just wanted to let you know since you mentioned possibly using them.

 

[penelopejane]

Penelopejane-

Per this website; http://www.fibromyalgie-guaifenesin.info/en/salsearch/

Both annatto and madder root contain salicylate. I had to plug in the scientific names but they were in the database. Unfortunately, I don’t know how much salicylate per gram but we do know that spices tend to be concentrated sources.

Just wanted to let you know since you mentioned possibly using them.

Good find.
You are right about the cheese flavouring it’s concentrated flavouring, herbs and spices. Lethal.
I was looking at potatoes from the perspective of causing fatigue rather than salicylates. It has lectins. Not sure if that’s a thing. I think it’s the salicylates and glutens that cause fatigue in me but always looking.

 

[Teresa408]

[QUOTE="penelopejane, post: 759836, member: 19729”]I think it’s the salicylates and glutens that cause fatigue in me but always looking.[/QUOTE]

Please let me know if you figure it out. I’ll have to look at lectins. Fatigue is really hard on me. I’m eating mostly lentils and rice and oats the past few days and it’s lifting, but I also just stopped a salicylate medication a few days ago.

 

[Dan9250]

checkout this website for The most common symptoms of salicylate sensitivity:

https://en.wikipedia.org/wiki/Salicylate_sensitivity

 

[Teresa408]

checkout this website for The most common symptoms of salicylate sensitivity:

https://en.wikipedia.org/wiki/Salicylate_sensitivity

There is so much information out there, it’s very overwhelming, and not all of it is even in agreement. I’m just starting with mostly lists of what products are okay to eat and use for now, and I’ll keep on reading from there.

 

[penelopejane]

Please let me know if you figure it out. I’ll have to look at lectins. Fatigue is really hard on me. I’m eating mostly lentils and rice and oats the past few days and it’s lifting, but I also just stopped a salicylate medication a few days ago.

Are you vegetarian? I think you might need some protein for energy. I stick to Chicken or fish or eggs. No bacon or ham although prosciutto made in Parma (no preservatives except salt) in small quantities lifts a meal.

I’ve worked out what I can eat and just stick to those (except when I go out). It’s boring to others but works for me. Fatigue can be counteracted just keep testing. Remember it takes 3 days for some reactions to appear (this was a huge discovery for me) and another 3 days to get out of your system.

Have a look at this woman’s research. Some of it is way out there but her lists are pretty good. She explains why some salicylate free food is still no good.
Don’t take anything you read on the internet as gospel. Just see what works for you.
https://alisonvickery.com.au/category/blog/chronic-fatigue/

 

[Teresa408]

Are you vegetarian? I think you might need some protein for energy. I stick to Chicken or fish or eggs. No bacon or ham although prosciutto made in Parma (no preservatives except salt) in small quantities lifts a meal.

I’ve worked out what I can eat and just stick to those (except when I go out). It’s boring to others but works for me. Fatigue can be counteracted just keep testing. Remember it takes 3 days for some reactions to appear (this was a huge discovery for me) and another 3 days to get out of your system.

Have a look at this woman’s research. Some of it is way out there but her lists are pretty good. She explains why some salicylate free food is still no good.
Don’t take anything you read on the internet as gospel. Just see what works for you.
https://alisonvickery.com.au/category/blog/chronic-fatigue/

I eat meat, I’ve nust been sticking to the lentils and rice since I was sure they worked for me. I had a massive migraine yesterday, probably because I made a scented soap. I’ll check out that site further, looks like a lot of good info.

A few days ago I had eggs and had instant symptoms, so those may be a problem for me or it could be the toast. My dad has trouble with eggs so that could be a separate issue.

Yesterday I kept it to chicken and rice and oatmeal and symptoms were improving. I’m thinking I will stick as close to that as possible and add foods slowly to test for tolerance. I’m definitely seeing signs that I’m getting better so it’s really exciting and motivating to keep at it!

I’m going to make a few rice bran oil/coconut/Shea soaps this weekend or next week with some sugar to help with bubbles. I might add a little cocoa powder/charcoal/poppy seeds too. Any ideas on the soaps? I’m thinking I make them completely salicylate free for now until I figure out my tolerance level.

 

[penelopejane]

I eat meat, I’ve nust been sticking to the lentils and rice since I was sure they worked for me. I had a massive migraine yesterday, probably because I made a scented soap. I’ll check out that site further, looks like a lot of good info.

A few days ago I had eggs and had instant symptoms, so those may be a problem for me or it could be the toast. My dad has trouble with eggs so that could be a separate issue.

Yesterday I kept it to chicken and rice and oatmeal and symptoms were improving. I’m thinking I will stick as close to that as possible and add foods slowly to test for tolerance. I’m definitely seeing signs that I’m getting better so it’s really exciting and motivating to keep at it!

I’m going to make a few rice bran oil/coconut/Shea soaps this weekend or next week with some sugar to help with bubbles. I might add a little cocoa powder/charcoal/poppy seeds too. Any ideas on the soaps? I’m thinking I make them completely salicylate free for now until I figure out my tolerance level.

Both coconut and olive oils are high (not very high-see charts) in salicylates.
I don’t react at all to olive oil but I do to high percentages of coconut in soap. I can use up to 10% with no problem. I am really intolerant of coconut (in all forms) in food though so it might be my thing.

 

[sillygirl625]

Olive, coconut, castor and Rosehip reaction doesn’t necessarily mean the OO is the culprit. Test every one separately and more than once.

Salicylates can cause (in me) itchy skin, crankiness, hyperactivity, dizziness, headaches, oedema in my legs, stomach problems (!), vomiting, vertigo, insomnia, nodules on my lungs and kidneys, keritosis (in many forms) and tinnitus. One of my sons gets migraines with no pain but black and white vision and then vomiting. One of my sons gets hyperactive.

Don’t ignore it but find a balance of low salicylate that you can live with but without any symptoms at all.

I haven’t used an Annatto or madder root yet. I have both ready to try. The clays are fine for colour. I only use natural colour and only those that I don’t react to or are very low in salicylates. That’s an easy place to avoid salicylates in your diet. Salicylates do transmit through your skin.

There are some things that might give me a low reaction that I might not know about but they all add up. I’m older now and am getting nodules on my lungs and other symptoms that I never had or noticed before. It is just not worth the risk. I wish I had known more about it when I was younger. I didn’t discover my family’s intolerance (on my father’s side) until my son was 4 and having severe reactions. We had him tested and realised we all had it we just didn’t know. Luckily my mother was a plain cook and never cooked with pre-prepared
Foods and she didn’t push me to eat foods I didn’t like (I must mage instinctively known some foods made me sick) so I had a good low salicylate diet when I was young.

BHT just isn’t worth it for me in food or soap. You have to work out what you are prepared to accept.

I am very curious how you tested for salicylate intolerance? I have yet to find a good way to confirm this medically. My entire family has it and I know it but it is very difficult to explain to school and the doctors just go along with what I tell them... I would love a way to show them what I am saying medically.

 

[penelopejane]

I am very curious how you tested for salicylate intolerance? I have yet to find a good way to confirm this medically. My entire family has it and I know it but it is very difficult to explain to school and the doctors just go along with what I tell them... I would love a way to show them what I am saying medically.

When my son was 4 he was throwing up all the time so we went to a pediatric allergist and she put him on an exclusion diet (4 weeks on diet) and then tested various substances as the diet continued. Takes about 7-8 weeks depending on how you react to the various substances they give you. Came back really allergic to salicylates and some allergy to amines. We went through the reactions to food that my father, his sister and the rest of us have and we worked out we were all allergic to salicylates to a varying degree.

An exclusion diet is a really radical way to test your intolerance but I've done it myself. The silly dietician at the specialist allergy centre kept giving me food on the exclusion diet that had salicylates in it. She said others weren't that sensitive to it. Eventually when I stabilised on the diet I tested the challenges and was a yes to salicylates and amines.

I would personally just test yourself on high salicylate food for 3 days and see what reaction you get. Remember than salicylates stay in your system for 3 days and they build up over time. Keep an accurate food diary. I can have spaghetti bolognese for dinner (and no other salicylates for a few days) and have no effect but if I had it for breakfast, lunch and dinner I would get a reaction.

I made myself really vert sick recently using a friend's toothpaste - mint and sodium laurel sulfate. Apparently SLS can enhance the level of salicylates (mint) so my reaction was huge.

 

[sillygirl625]

When my son was 4 he was throwing up all the time so we went to a pediatric allergist and she put him on an exclusion diet (4 weeks on diet) and then tested various substances as the diet continued. Takes about 7-8 weeks depending on how you react to the various substances they give you. Came back really allergic to salicylates and some allergy to amines. We went through the reactions to food that my father, his sister and the rest of us have and we worked out we were all allergic to salicylates to a varying degree.

An exclusion diet is a really radical way to test your intolerance but I've done it myself. The silly dietician at the specialist allergy centre kept giving me food on the exclusion diet that had salicylates in it. She said others weren't that sensitive to it. Eventually when I stabilised on the diet I tested the challenges and was a yes to salicylates and amines.

I would personally just test yourself on high salicylate food for 3 days and see what reaction you get. Remember than salicylates stay in your system for 3 days and they build up over time. Keep an accurate food diary. I can have spaghetti bolognese for dinner (and no other salicylates for a few days) and have no effect but if I had it for breakfast, lunch and dinner I would get a reaction.

I made myself really vert sick recently using a friend's toothpaste - mint and sodium laurel sulfate. Apparently SLS can enhance the level of salicylates (mint) so my reaction was huge.

Thanks so much for your reply! We have done quite extensive exclusion diets, unfortunately not under a dietitians guidance, but nonetheless we are now sure we have a salicylate intolerance, at varying degrees, for everyone in our family. It has been a challenge to say the least, but we have figured out the cause of so many extreme reactions from aggression to clingyness, stomach troubles to rashes and rapid heart rate and lethargy and arthritic pain. It has truly been a lifesaver knowing how to stop the reactions, and getting our kids back. Thanks again for your reply, it is nice to know we are not alone in this!

 

[penelopejane]

Thanks so much for your reply! We have done quite extensive exclusion diets, unfortunately not under a dietitians guidance, but nonetheless we are now sure we have a salicylate intolerance, at varying degrees, for everyone in our family. It has been a challenge to say the least, but we have figured out the cause of so many extreme reactions from aggression to clingyness, stomach troubles to rashes and rapid heart rate and lethargy and arthritic pain. It has truly been a lifesaver knowing how to stop the reactions, and getting our kids back. Thanks again for your reply, it is nice to know we are not alone in this!

Don't take them off salicylates entirely. Just find out their threshold limits and work around those. I wasn't vigilant enough with my kids and one of my boys was 6' 5" and the other two are 5' 10". I think that was because of salicylate intolerances and I gave them too much salicylate. Too little and they react wildly when they have any. So very difficult.

 

[SensitiveSoapMaker]

You too. At least you know you are not alone
What I am trying to say in my long winded way is that this is something you can learn to live with.
I can go to a thai restaurant and eat anything and as long as I am careful the next 3 days I will have no reaction. I can drink champagne and scotch. I can be thankful for the almond and orange GF cake that someone thinks I can eat. I have a small piece and eat it and if I am careful for the next 3 days I won't have a reaction. Except for corn and coconut I can eat a small amount of anything and I am ok. It's the symptoms that you can't see that are a worry so it is better for me to stick to a moderately low salicylate diet. Don't cut them out totally, just learn what you can't tolerate.

I see to be ok with sour dough bread but in small amounts but I don't have it very often at all. I still react to gluten The doctors tell me that it is putting too much pressure on my system and I am better off without it. But I will check it. Nothing is static it seems.

I can't have cashew, chocolate or soy either. Chocolate has salicylates but cashew is supposed to be low so I don't get that. I have a quick bad reaction to Cashews. It is a deadly nightshade plant though so maybe there is something in that? It is high in Lectins too. Not sure if that is a legitimate thing or not. Somethings are just not worth the reaction you get.

Thank goodness I can eat dairy!
My kids went away to school too. They learnt that if they ate something they couldn't they'd be sick. Sometimes they ate it anyway and put up with throwing up because it was so good.
Too much salicylate causing reactions can stunt their growth though. That might make them think.

Good luck.

I know this is an old post but I was looking into safe soap ideas and stumbled across this. Have you looked into amine sensitivity? Chocolate and cashews are very high amine. I am sensitive to both salicylates and amines which I discovered using the RPAH Failsafe Elimination Diet. They have a book on Amazon with charts and all the info called Friendly Food which has been a lifesaver. I determined I can only do low amines, but I can tolerate moderate salicylates. My daughter can tolerate moderate amines but low salicylates.

 

[penelopejane]

I know this is an old post but I was looking into safe soap ideas and stumbled across this. Have you looked into amine sensitivity? Chocolate and cashews are very high amine. I am sensitive to both salicylates and amines which I discovered using the RPAH Failsafe Elimination Diet. They have a book on Amazon with charts and all the info called Friendly Food which has been a lifesaver. I determined I can only do low amines, but I can tolerate moderate salicylates. My daughter can tolerate moderate amines but low salicylates.

Thank you. Yes my children and I are all sensitive to both salicylates and amines to varying degrees. We discovered it when I took my oldest son the RPA when he was 4 and kept throwing up all the time. It runs in my father’s side of the family and they were (mostly) pleased to have a concrete reason for fussy eating.